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EXECUTIVE COMMITTEE

Please click on a name below for more information about a Committee Member.

Chair

Julia is an experienced palliative care nurse, educationalist and researcher, with a PhD that evaluated palliative care training in rural Uganda. She has been working within palliative care for 27 years, with seventeen of those working internationally in Uganda, Africa, Eastern Europe and Globally. She is the Chief Executive of the International Children’s Palliative Care Network (ICPCN) and an Honorary Professor at Makerere University. She has extensive experience in research, presenting at conferences and writing for publication, and is on the editorial board of the International Journal of Palliative Nursing (IJPN). She has been involved in a number of local, national and international research studies, and regularly teaches research skills.

Julia serves on the Boards of several international NGOs, is on the Board of the Palliative Care Association of Uganda, the International Association of Hospice and Palliative Care (IAHPC) and the Worldwide Hospice and Palliative Care Alliance (WHPCA). She is a Visiting Professor at Edge Hill University, the University of South Wales and the University of Belgrade in Serbia. She is also an Honorary Senior Research Fellow at the Cicely Saunders Institute, King’s College London, England. She was the recipient of the IJPN’s Development Award in 2006, The ISNCC Robert Tiffany Lectureship in 2014, the 2015 ONS Pearl Moore “Making a Difference” International Award for Contributions to Cancer Care and in 2016 she was awarded and Honorary Fellowship from Cardiff University. She was also featured in a publication on Women as Change Agents in Oncology.

Treasurer

Sally is Head of Education, Research and Practice Development at Strathcarron Hospice in Stirlingshire, Scotland. She worked as a Speech and Language Therapist in the NHS and third sector for over 20 years before completing her PhD, an investigation of goal setting practice in palliative care. During this work, Sally collaborated with Strathcarron Hospice and researchers from both the Scottish Government Nursing Midwifery and Allied Health Professions Research Unit (University of Stirling) and the University of Glasgow to develop and implement a goal setting intervention in Strathcarron Hospice. This enabled her to co-construct a theory and research-based intervention (Goal setting and Action Planning in palliative Care, G-AP PC) that was relevant, feasible, effective and implementable. As a result of this work, Sally won the 2013 Scottish Health Innovation award. Sally is passionate about patient centred care and ensuring that people with communication difficulties are given the same chance as everyone else.

Communications Officer

Anna is a PhD Training Fellow at the Cicely Saunders Institute, King’s College London. She graduated from the University of Oxford with a BA in Human Sciences in 2011 and went on to complete a Masters of Public Health from Imperial College London in 2013. Following her MPH, Anna joined the Cicely Saunders Institute at King’s College London, working as a Research Assistant on a feasibility trial of short-term integrated palliative care for frail older people in the community (OPTCare Elderly study). Anna began her PhD in 2016, which is a mixed methods study of older people’s emergency department attendance towards the end of life.

Membership Officer

Anne is the Research Lead at Marie Curie Hospice Edinburgh and an Honorary Fellow at the University of Edinburgh.  Anne worked in marketing before undertaking an MSc in Research and subsequently a PhD in Psychology at the University of Edinburgh. Anne joined Marie Curie in 2011 and since then has been involved in a range of projects focused on improving palliative care in hospice, community and hospital settings. Anne has a particular interest in systematic review methods, caregiver support, delirium, and psychological approaches to improve quality of life in context of palliative care.

Secretary

Dr Stephen Mason is Lead of the Research and Development Division of the Palliative Care Institute Liverpool at the University of Liverpool (http://www.pcil.org.uk). As Lead, Stephen’s role includes: supervisings and mentoring a team of researchers and clinical academics, including Honorary Clinical Lecturers, Academic Clinical Lecturers, Academic Clinical Fellows, Research Fellows and Research Assistants; writing and co-ordinating grant submissions; overseeing applications for ethics and Research and Development (R&D) approval; and participating as a strategic lead in the Institute Management Group.

The research portfolio of the Institute is broad and engages studies from bench to bedside, developing the evidence base to drive up the standards of care for dying patients and their families. Funding sources for Institute studies include European Union FP7 Programme, National Cancer Research Institute, National Institute for Health Research, Wellcome, Marie Curie Cancer Care/Cancer Research UK Awards, Dimbleby Cancer Care, regional strategic health organisations and the University of Liverpool. The Institute has published over 140 articles in peer-reviewed journals including PLoS Medicine, the BMJ, Pain & Symptom Management, Palliative Medicine, BMJ Supportive and Palliative Care, Supportive Care in Cancer, British Journal of Cancer, Clinical Teacher and the European Journal of Palliative Care.

Stephen is a member of the European Association of Palliative Care (EAPC) Steering Group on Medical Education and Training and currently leads a Task Force to examine undergraduate training in palliative medicine across Europe (www.eapcnet.eu/Themes/Education/Medical/iMEPRU.aspx). Stephen also contributes to undergraduate and postgraduate medical education at the University of Liverpool.

Calendar co-ordinator

Felicity Hasson is a Senior Lecturer in the Institute of Nursing Research at the University of Ulster with twenty years’ experience in research. A social researcher by background, she has extensive experience and knowledge of qualitative, quantitative and mixed method research and has been involved in numerous research studies in palliative and end of life care.  Felicity is a member of the All Ireland Institute of Hospice and Palliative Care Council of Partners and Palliative Care Research Network (PCRN) and Northern Ireland Hospice Research Committee. Her research interests include nurse and assistant workforce, workforce training, palliative care and chronic illness (malignant and non-malignant with patients, families and multi-disciplinary health care professionals) and public awareness of palliative care and end of life issues.

Member

Ruth was appointed as a Consultant in Palliative Medicine in 2008 and is based in an independent hospice in Scotland. She provides a clinical service for patients who are being cared for in the 24-bedded specialist palliative care unit or in the community setting. She has completed her MD for which she undertook a mixed methods study exploring the burden of opioid side effects, the impact of opioids on cognitive function and the patient experience of opioid toxicity. The study also explored the phenomenon of opioid induced hyperalgesia and describes the clinical presentation of opioid-induced hyperalgesia. She has also undertaken several courses including research ethics, quantitative and qualitative research methodologies and academic writing skills, and has completed an MSc in Medical Sciences with the University of Liverpool.

Ruth’s research interests are in the management of cancer pain and the impact of opioids. She is committed to developing the research strategy of the hospice, supporting colleagues who wish to undertake research and to developing the skills of the multiprofessional team with whom she works.

Vice Chair

We currently have a position available for Treasurer. If you are interested in applying or would like to find out more, please contact Kate at pcrs.ea@gmail.com.

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